Tuesday, 24 Aug 2004

24 August, Tuesday: Brief update (1 PM, Hawaii Standard Time) – Last night Gabriella had a rough patch…high heart rate and respirations.

Unclear at this time if related to new medication or just increased heart failure. Met with Dr. Mahnke this morning and he re-admitted Gabriella to the hospital for further evaluation. Both Mom and Dad are pleased with Dr. Mahnke’s decision, as it is the low-risk course of action.

Bottom line: this is not a crisis, just prudent medicine. Visitors are welcome: Room 10, Pediatrics Ward, 7th Floor (Oceanside), Tripler Army Medical Center – No need to call first. Finally, GG’s weight was up again today another ounce…another step forward. As always, thank you for your prayers.

Thursday, 19 Aug 2004

19 August, Thursday: GG’s first evaluation today was with the Speech Pathologist, Lorna, and the Occupational Therapist, Sandy. They watched Gabriella bottle feed in order to evaluate her ability to suck, swallow, and breathe. They were very impressed with her abilities in all areas and gave GG high marks overall.

However, Lorna cautioned that the ease and convenience of NGT feedings may reduce “GG’s” desire to bottle feed.  Accordingly, they recommend 15-20 minutes of bottle feeding prior to the NGT feeding, so that her suck, swallow, and breathing skills continue to develop.

Next, the nutritionist, Major Desrosier dropped by to explain the process he will use to develop the optimal diet for Gabriella. His task requires balancing calories and volume against Gabriella’s ability to tolerate the volume and process the high-protein formula. After just a short while, Gabriella captured his heart and all he wanted to do was play with her. They became fast friends and the Major gave “GG” one of his secret foot massages. Gabriella was asleep in minutes and the Major went off to crunch some numbers.

The final test of the day was the upper gastrointestinal (upper GI) exam. The radiologists injected Barium into Gabriella via the NGT in order to evaluate her esophagus, stomach, and the first part of the small intestine. Bottom line: No problems were detected. Tired from all of the day’s activities, Gabriella spent the rest of the day napping.

Yesterday, Gabriella “ate” 530 ml (17.5 oz) of formula – topping her previous high of 425 ml. Gabriella’s weight today was off the charts and as such, probably inaccurate. She weighed in at 8 lbs 5 oz. Ideally, she should gain 1 to 1.5 oz per day on this diet. Thus ends another busy day.

Thank you for your prayers.