Cookie Party!

Sunday, 29 Mar 2015

(335 = ANC @ 06:52 on 29 Mar)

Blessed is the king who comes in the name of the Lord!

One of Ella’s favorite activities is having a late night cookie party with Papa.  We are delighted to report that Ella’s health is steadily improving. So much so that we are confident she will be discharged tomorrow.  No better way to celebrate Ella’s freedom than to stay up late and have a cookie party.

Did we happen to mention that Ella loves cold milk?

Bonus points if you can identify the music video playing on Ella’s iPad mini.

Thank you for your prayers.

God bless you.

A Friend in Need is a Friend Indeed

Wednesday, 26 Mar 2015

(14 = ANC @ 04:15 on 26 Mar)

Faithful is God, faithful and true: come, let us adore!

Sage is one of Ella’s FaceTime friends.  Sage is in the Lucile Packard Children’s Hospital at Stanford.  Please join us in praying for Sage and her family.

Sage’s father Sam, is incredibly strong and courageous.

Ella made this very special card for Sam right after we said many prayers for Sage.

Please know, Ella is safe and comfortable.

Tomorrow we will know a bit more…details to follow.

Thank you for your prayers.

God bless you.

Bitter Sweet 16

Tuesday, 24 Mar 2015

(16 = ANC @ 1145:40 on 24 Mar)

The Lord listens to our prayer: let us approach the throne of grace.

Ella had a pretty good day today – she went to the KMC PAU with Mum and Nurse Irvin. She received a second dose of IV antibiotics and she met with Dr. Glaser for the second day in a row.

However, the real highlight was meeting Auntie Mo and service dog Jake. Auntie Mo and Jake are from the Service Dog Academy on Maui. They flew over from Maui today just to conduct Ella’s “in-home interview.” Soon, Ella may have her very own Service Dog…how cool is that?

Ella’s medical condition is our continuing concern.

The respiratory infection is still with her.

She continues to require supplemental oxygen 24/7.

She continues to have fevers – just above 101.5 at various times.

Most frightening of all, Ella’s ANC number is lower than low.

16 is suppose to be part of the NCAA basketball tournament.

16 is NOT suppose to be an ANC number – ever.

For all intents and purposes, her immune system is completely off-line.

Your prayers are needed more than ever.

Thank you for your prayers.

God bless you.

Respiratory Infection Confirmed

Monday, 23 Mar 2015

(126 = ANC @ 09:40 on 23 Mar)

God is our rock of refuge: let us give thanks and praise.

As suspected, Ella has a respiratory infection.

It is unclear at this time if it is viral or bacteriological.

Ella will receive IV antibiotics over the next several days to support her severely weakened immune system. We are grateful Ella is able to recieve these infusions on an outpatient basis.

126 on today’s Absolute Neutrophil Count (ANC) is the lowest since she began treatment on 14 April 2014. (click on the link above to see Ella’s ANC history) Patient’s with ANC scores below 500 are considered at “high risk” of infection.

Please join us in saying a prayer of thanks to God for sending Ella into our lives.

Thank you for your prayers.

God bless you.

Interim Maintenance Phase TWO – Week 3 of 5

Friday, 14 Nov 2014

(1025 = ANC @ 08:46 on 14 Nov)

Give us this day our daily bread, and forgive us our trespasses, as we forgive those who trespass against us;

Today’s ANC and Platelet counts were 1025 and 108,000 respectively.

High enough for Ella to receive the third of five Chemotherapy sessions she will received during this “Interim Maintenance Phase TWO”.

The next few days she will likely suffer nausea and mouth sores.

Thank you for your prayers.

God bless you.

Tracking Ella’s Blood Numbers

Wednesday, 11 June 2014

(3024 = ANC @ 0850 on 09 Jun)

Ella’s health is improving each day. Amen!
Last week’s mystery fever departed without fanfare this past weekend.
Once again, the Ella we know and love returns to us.
It is truly amazing how she bounces back from each battle.
We praise and thank God that Ella is such an amazing fighter.

You may notice the ANC table is no longer at the top of the page. We have relocated that information to a seperate page. You can access that page by clicking on the ANC link (3024 = ANC @ 0850 on 09 Jun) in the headline of each article.
The detailed tracking data is presented in 3 seperate graphs. Below the graphs is a link that allows you to see the underlying spreadsheet and data.

We thank you for your prayers.
We thank God for sending his Son to save us.
God is GOOD! All the time…Amen!